Daley Ponderings

We are headed home on Monday!

Grace will still have at least one clinic visit a week and depending on the labs that week, might have a second appointment, but we decided that for the sake of our entire family, we need to be home and it is worth driving back and forth as needed.

At some point, we'll transition to some appointments at Dartmouth hospital and some at Dana Farber.

We need to get the prescriptions transferred to Hillsboro and the CVS in Boston isn't making that easy.

We are thankful that Grace has been less nauseous and we've been able to reduce her formula intake down to 16 ounces per day and she is eating more on her own and has steadily been gaining weight.

We need to figure out what "isolation" means for Grace and how to keep her from getting sick, but also not living in a complete bubble.

Her next milestone is the 3 month mark, where if things continue, her transplant will be considered to be successful, though there is still the possibility for graft vs host disease until she is off the immunosuppressant drugs.