Daley Ponderings

Today, Boston called to say they'd like to observe Grace over the weekend and to prepare for admission on Friday. They will likely do a colonoscopy and maybe even an endoscopy. (And Dartmouth suggested they get some bone marrow while she's sedated.)

She threw up her NG tube this morning and so Jon took her to Dartmouth. They were able to do her regular appointment stuff so we don't have to go in tomorrow. It was a more traumatic NG tube placement than the other two times, and their tape is not as good.

We have been giving her zofran the last few days. Her appetite has been practically nil. There's definitely something going on. It's not the typical GVHD symptoms, but they haven't ruled it out yet. There might be an NF1 related cause; I've done minimal research on that and it's a possibility.

We depend on God to hold us up, so please intercede on our behalf.