Daley Ponderings

Due to getting COVID, Grace's transplant date has been re-scheduled and we are currently scheduled to start the prepatory chemo (much stronger than the previous chemo she has received) on January 30th and then the bone marrow transplant a week later.

We expect to be in the hospital for at least a month and then staying near the hospital in an apartment for a month or two.

Jon's work and insurance has been really great.  He has been told "work is optional" and to not stress about working, but just get done what he can.  Insurance is expected to cover just about everything, including the hotel and apartments in Boston.  There are also some other state-based insurance programs for people with severe disabilities and we are in the process of applying for those.  There are also a lot of non-profit organizations who exist to support the families of those children with leukemia.  There are fun blankets, special snap clothes that allow good access for medical procedures and stuffed animals to make for more cheery hospital visits.